A PCOS diagnosis can be described as a double edged sword. On one hand, you finally know for certain what is going on in your body. You have a condition and know that what you are experiencing is real and not some exaggeration, that it isn't a figment of your imagination. On the other hand, it can be frightening. Given that PCOS has no known cure and no dedicated treatments (only management), it can be a daunting diagnosis to receive. I mean at least with cancer there is a plan right?
To say PCOS is not just in your imagination is true, but it does get inside your head! This we know for sure as research has shown how depressive and anxiety symptoms are significantly increased. In fact, the international PCOS Guidelines, recently updated in 2023, recommend that all women and individuals with PCOS should be screened for anxiety and depression or other appropriate psychological assessment and given therapy as indicated.
Many people including healthcare professionals are unaware of the full scale of the mental health impact of PCOS. There is a need for greater awareness of the psychological features of PCOS that go beyond anxiety. For example, eating disorders are common in PCOS and some people find the symptoms have a negative impact on their body image and thus, their quality of life. Feeling like you are being dismissed by healthcare professionals can further compound some of these problems.
How can we contribute? Begin by taking every chance to discuss PCOS. Speak openly about it, and include conversations about mental health. If you need assistance, seek it without feeling ashamed. We all have mental health needs. It's important to empower ourselves while awaiting advancements in PCOS treatment. Empower yourself and communicate your decisions with your caregivers. Your voice is important, and this can also help enhance your mental health.
In the future, more integrated care models that emphasize the significance of mental health in PCOS treatment should be developed, as collaborative decision-making can be advantageous for PCOS.
(c) PCOS Vitality 2025
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