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Illustrated anatomy of the female reproductive system highlighting polycystic ovary syndrome (PCOS) features, including labeled parts like the fallopian tube, uterus, and polycystic ovary. (c) PCOS VItality 2024
Illustrated anatomy of the female reproductive system highlighting polycystic ovary syndrome (PCOS) features, including labeled parts like the fallopian tube, uterus, and polycystic ovary. (c) PCOS VItality 2024

Lichen sclerosus (LS) is a long-term skin condition. A common condition, affecting approximately 1 in 100 women, it causes skin to become thin, whitened, and wrinkled and can cause itching or pain. LS mainly affects the genital area, although it can appear anywhere on the skin. A new valuable resource, designed to empower patients to understand Lichen Sclerosus (LS), obtain treatment, and improve their quality of life , has been collaboratively created to support individuals with LS, along with their families, caregivers, and healthcare providers.


You can read the full guide here or see our 10 key takeaways for an overview



Key Takeaways from the guide


  1. Unknown cause - runs in families, people with LS more likely to also have autoimmune conditions


  2. LS is not contagious


  3. Symptoms include vulval itching, bleeding, fissures (small cracks), burning, painful sex, painful urination and/or defaecation


  4. Its important for all of us to check our vulvas - examine it for signs of changes or something that is not quite right.


  5. Diagnosis usually involves a physical examination and a discussion about your symptoms. Sometimes a biopsy may be needed.


  6. Topical steroids (also known as topical corticosteroids) are currently the best treatment available for LS. (ointment or creams).


  7. If you’ve got vulval lichen sclerosus (LS), keep a check on which parts of your vulva are affected so you can use your medication in the right places.


  8. If you have LS you should get yearly check ups.


  9. In between check ups, keep look out for signs of vulval cancer and precancer such as lumps, patches of raised, thickened, white skin, white patches, darker spots or red inflamed skin/patches or any ulcers or sores.


  10. It's crucial to keep up with your treatment to prevent the progression of LS, which can lead to permanent structural changes to the vulva.


If something doesn’t seem right to you, or you’re worried about a change in the way your vulva looks or feels, it’s important to talk it through with a health professional. The doctor or practice nurse at your local GP surgery is a good place to start.


(c) PCOS Vitality, 2025

Not medical advice. PCOS Vitality is not responsible for external websites.

Always speak to a medical professional for advice.

 
 
 



PCOS Vitality were grateful to attend a recent event at Stormont to discuss the new Women's Health Action Plan. The Women’s Health Action Plan will build on ongoing initiatives across Health and Social Care and will identify the priority actions that can be taken forward. Unfortunately, NI remains the only part of the UK not to have a Women's Health Strategy let alone a Women's Health Action Plan. We were delighted to contribute to this event by highlighting the effects of living with PCOS, obesity, and mental health issues on women's health. The Women's Health Action Plan should be considered an initial step towards enhancing women's health outcomes in the north.




The Department is working in partnership with Derry Well Women and Queen’s University Belfast on a public listening exercise to understand women's perspectives on the current service provision, expectations for their future health, and identify gaps to inform a future strategy for Women's Health NI. We look forward to the summary report that will be produced soon. In the meantime, if you would like to take part in the listening research project you can find the survey at the following link



(c) PCOS Vitality 2025

Please note we are not responsible for any external webpages or surveys.

While we use the words "women/woman" we acknowledge that not all females identify as this but everyone should be included in this work. For the purposes of this article we are referring generally to biological sex at birth.


 
 
 

Non-invasive blood test shows promise for Endometriosis diagnosis
Non-invasive blood test shows promise for Endometriosis diagnosis

Endometriosis diagnoses usually take a long time and are usually invasive, requiring surgery. New research in the international journal, Human Reproduction, has developed a blood test to diagnose Endometriosis.


Developed by Proteomics International, the test is a significant step forward in diagnosing this often debilitating disease. While it is still early days as we wait to see how it could translate into primary care, it is promising as currently the time to diagnosis is believed to take on average 7 years.


You can read the full study here


 
 
 

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